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AGSD-UK board of trustees seeks new members.

Four trustees retire

Jane Guy, Stuart Alderson and Mike Porter all retired from the Board of Trustees at our AGM on 6 October 2019. Heneage Legge-Bourke also stood down earlier this year. See their biographical notes here. They were thanked for their service by the Acting Chairman, Nick Jones.

New trustees needed, can you help?

The board is now actively seeking AGSD-UK members who would be interested to join the board to help steer the association and ensure that it delivers on its mission statement: “Supporting people affected by Glycogen Storage Disease to live positively with their condition” and our objects – read more about what we do.

It is ideal, though not essential, if trustees are affected by one of the GSDs, or have a family member so affected. The board would be particularly interested in applicants who have expertise in the areas of: support of patients, finance, legal, social services, fundraising and social media. We are also keen to have more representation from younger members.

This is a powerful opportunity to pay back, to contribute to the well being of people affected by GSD.

The minimum commitment is to attend three board meetings per year, held on Saturdays, and to deal promptly with all meeting papers and correspondence between meetings. You would be expected to attend the annual conference. Any special responsibilities which you accept would be in addition.

Induction and training

Should you join the board, induction and training will be provided to help you quickly become effective in the role. Reimbursement may be claimed for travel and out-of-pocket expenses.

We are a registered charity and a company limited by guarantee. In company terms, Trustees are directors of the limited company and have the relevant statutory responsibilities.

Make a “no-strings” enquiry

If you feel that you have something to contribute and have the time available, please make an initial “no-strings” enquiry through the “Message us” form.

After an exploratory chat, if both parties wish, the procedure is then to attend an initial board meeting. If both sides are happy you will be promptly co-opted to the board. You then stand for election at the next Annual General Meeting.

Or consider other volunteering

If you feel that board membership is not for you, please consider other ways of volunteering. Read about other volunteering opportunities here.