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Trustees who served in recent years

We are grateful for the service of past Trustees and are very pleased to acknowledge them here.

Mike Porter

Mike served as a Trustee from 2012 to 2019, with the latter five years as Chairman. 

Mike has worked in a number of different industry sectors but spent twenty years in the technology and business process outsourcing market, where he became Managing Director of a business with over two thousand staff. He has lived and worked in the UK, Europe, Japan, USA and Canada. In 2009 he set up his own management consultancy business and continues to support a number of small and medium sized companies as well as providing coaching support to senior managers.

With a Masters degree in Business Administration, Mike went to school and university in Lancashire, though he was born and raised in Scotland moving to England when he was seven.

Following a four-year spell living in Denver, Colorado, Mike returned to the UK in 2007 and is now settled in the picturesque Eden Valley in North Cumbria. He is a keen walker and motorcyclist and has been a supporter of Preston North End for 50 years. His eldest two children are married and the youngest is currently reading English at Hull University.

Mike’s wife Amanda was diagnosed with adult-onset Pompe disease (GSD2) in 2011. She commenced treatment with Myozyme and moved to home infusions in 2012.

Heneage Legge-Bourke

Heneage served as a Trustee and Honorary Treasurer from 2017 to 2019.

A British citizen aged 70 and educated at Eton College, L’Université de Paris, Ecole Hôtelière Lausanne and London Business School, Heneage spent the first five years of his career in the hotel business. He then joined the London Merchant Bank Kleinwort Benson Ltd and was posted to Brazil for seven years as Group Representative.

After returning to London he subsequently joined Orkem, a French government chemical company as Treasurer. Orkem was then merged into Elf, the French national oil company, where he led the financing team. He was later seconded as Finance Director to Interconnector UK, a gas pipeline project from Norfolk to Belgium. After two years he returned to Paris and joined the French investment bank Natixis where he was a director in the corporate finance department. After ten years he retired and returned to the UK where he joined the Citizens Advice Bureau in Diss, Norfolk as Honorary Treasurer.

Relocating in 2017 to Oxfordshire Heneage joined AGSD-UK also as Honorary Treasurer in order to continue charity work, placing his experience at the disposal of the board so as to ensure prudent management of the charity’s finances.