Survey of muscle GSDs and COVID-19 issues.
IamGSD has launched a survey of people affected by muscle GSDs and how they are being affected by the COVID-19 pandemic.
Mendelian – reducing diagnostic delay in GSDs.
Mendelian, working to reduce diagnostic delay, and thus improve quality of life, in rare diseases including glycogen storage disease.
AGSD-UK new registrations up by 26% in 2019.
During 2019 the rate of new registrations with AGSD-UK increased by 26% over the previous year. We consider the reasons why.
IamGSD offers McArdle “Second Wind” T-shirts.
IamGSD has a limited-time opportunity to order McArdle’s “Second Wind” T-shirts, sweatshirts and hoodies. Order by 23 March.
Rare Disease Day – and happy 20th Lauren.
Rare Disease Day, 29th February, we celebrate everyone with rare conditions. Today Lauren is special as it’s also her 20th birthday.
Countdown to Rare Disease Day 2020: 1
Countdown to Rare Disease Day 2020 on 29th February. We can support you to give a talk to raise awareness of GSD.