National 3 Peak Challenge in 24 hours for Hugo.
At the end of April 2021 a small team will be #HikingForHugo and taking on the National 3 Peaks Challenge in 24 hours.
Kieron Stubbings raises over £6000 for AGSD-UK!
Kieron Stubbings has completed the 2020 London Marathon virtually to fundraise for AGSD-UK
Ann Phillips, 1934–2020, co-founder of AGSD-UK.
We are sad to report that AGSD-UK co-founder Ann Phillips has passed away shortly after contracting COVID-19 in her care home. She was 86.
Transatlantic diagnosis correction, after 29 years!
Steve Wills from Indiana, USA, was diagnosed with McArdle disease (GSD5) when he was 8. He had come to think he was not like others with McArdle’s…
EMA accepts regulatory submission for avalglucosidase alfa.
Avalglucosidase alfa reaches its first important regulatory milestone
Support AGSD-UK with AmazonSmile.
Help fundraise for AGSD-UK using AmazonSmile for all Amazon purchases