Seeking Lafora patients: Angelina’s story.
Has your child been diagnosed with Juvenile Myoclonic Epilepsy?
How are you living with a liver GSD?
AGSD-UK has teamed up with Vitaflo to learn more about how you live with liver GSD
Rob Wood.
Rob Wood, long time AGSD-UK supporter passes way too soon.
Could you be the EURORDIS Photo Award 2021 winner?
EURORDIS Photo Award 2021 is open for submissions
National 3 Peak Challenge in 24 hours for Hugo.
At the end of April 2021 a small team will be #HikingForHugo and taking on the National 3 Peaks Challenge in 24 hours.
Kieron Stubbings raises over £6000 for AGSD-UK!
Kieron Stubbings has completed the 2020 London Marathon virtually to fundraise for AGSD-UK