Great success for walking course and children’s event.
The Walking with McArdle’s course, and the Children & Parents event, were a great success in the Pembrokeshire National Park, Wales.
McArdle Disease Handbook reaches 30 countries.
Recent sales in Eastern Europe and the Middle East mean “The McArdle Disease Handbook” has reached patients and professionals in 30 countries.
Bladder control survey for GSD2 and GSD5
Manchester Metropolitan University is investigating how bladder problems affect quality of life in neuromuscular conditions, including Pompe and McArdle’s.
Debut performance of new harp by GSD5 patient
Sioned Williams to give debut performance of new instrument, the Soveida Harp, which articulates its sound in eerie stereo.
IamGSD’s Global Walking Week starts 20 May
Every year people with muscle GSDs, particularly McArdle’s for which the most effective treatment is physical activity, participate in this walking week.
McArdle’s service seeks a Clinical Fellow
The McArdle disease and related disorders service, National Hospital for Neurology and Neurosurgery in London, is recruiting a Clinical Fellow.