Winter Season of GSD talks and events coming soon.
This year AGSD-UK will again be offering a series of talks and presentations
Louise Bett.
AGSD-UK are deeply saddened to learn of the recent passing of Louise Bett.
COVID-19 vaccination for children and young people aged 12-17 years.
It is recognised that a small number of children and young people aged 12-17 years with specific underlying health conditions may be at risk of COVID-19 and should be offered a COVID vaccine.
Liver Glycogen Storage Disease Top 11 Questions.
The top eleven questions that patients, families and healthcare professionals want to be addressed in liver storage disease by researchers.
RCPCH &Us Rare Disease Survey.
RCPCH &Us have a survey for children & young people aged 13-25, who have a rare disease & live in the UK.
Winner announced of the PST Avatar Competition.
The Pompe Support Team wanted to create a fun opportunity for children, as a show of support during lockdown.