Survey of muscle GSDs and COVID-19 issues.
IamGSD has launched a survey of people affected by muscle GSDs and how they are being affected by the COVID-19 pandemic.
IamGSD offers McArdle “Second Wind” T-shirts.
IamGSD has a limited-time opportunity to order McArdle’s “Second Wind” T-shirts, sweatshirts and hoodies. Order by 23 March.
NICE seeks lay members for technology evaluation.
NICE are looking for lay members to join their highly specialised technologies evaluation committee.
Eurordis H-Care Survey of rare diseases.
AGSD-UK supports the Eurordis-led initiative of a survey of care in rare diseases across Europe. It takes just 10 minutes!
UN Volunteer Day – join our web team?
On this UN International Volunteer Day of 5th December, AGSD-UK asks “Could you volunteer to join our web team?”