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Eurordis H-Care Survey of rare diseases.

Europe-wide survey of care for rare diseases

The H-CARE Survey will help EURORDIS-Rare Diseases Europe, an alliance of patient organisations, to know more about your views and experiences of the health care you receive for a rare or complex disease.

Through asking questions on topics such as whether you receive a choice in your treatment, whether you receive emotional as well as physical care and your experience of follow-up care after a visit to a healthcare professional, Eurordis will be able to better measure and understand your satisfaction with the care you receive.

A few minutes of your time

This survey will take around 10 minutes to complete. Your feedback will help hospitals that are part of a European Reference Network to deliver better care for you or the person you care for.

Take the H-CARE survey.

EURORDIS is a non-governmental and non-profit alliance of patient organisations, representing over 800 rare disease patient organisations in over 70 countries.

Go to the Eurordis web site.