Europe-wide survey of care for rare diseases
The H-CARE Survey will help EURORDIS-Rare Diseases Europe, an alliance of patient organisations, to know more about your views and experiences of the health care you receive for a rare or complex disease.
Through asking questions on topics such as whether you receive a choice in your treatment, whether you receive emotional as well as physical care and your experience of follow-up care after a visit to a healthcare professional, Eurordis will be able to better measure and understand your satisfaction with the care you receive.
A few minutes of your time
This survey will take around 10 minutes to complete. Your feedback will help hospitals that are part of a European Reference Network to deliver better care for you or the person you care for.