International Pompe Day.
International Pompe Day – 15th April 2022
What is a Clinical Trial?
Researchers are looking for new and improved drugs and treatments for Glycogen Storage Disease.
England’s first Rare Diseases Action Plan published.
More information about the newly published Rare Diseases Action Plan for England.
Sioned’s Rare Disease Day 2022.
Sioned Williams celebrates Rare Disease Day with a short video talk about her life and career with McArdle’s, and an appeal via JustGiving.
Research Study – Exercise and Pompe Disease.
Invitation to participate in research for UK adults living with Pompe.
Rare Disease Day 2022.
1 week to go until Rare Disease Day 2022.