Nutrition in McArdle’s – international workshop
The future of nutrition for McArdle disease is the subject of an international workshop to be hosted in London by IamGSD and CNMD.
GSD Kids Camp: Can we do this next year?
AGSD-UK partnered with Over the Wall kids camps in October 2018 to take 6 families to Whitemoor Lakes Adventure centre.
Walking course heroes
12 people with McArdle’s, from 8 countries and aged up to 74, made the summit of Pen y Fan on course in Wales.
Very happy Family Day at GOSH
Ten families joined the Family Day at Great Ormond Street Hospital in October 2018, and didn’t want to go home.