Hackney Youth Awards first prize winner
AGSD-UK member Abdullah Amerat won first prize in London’s Hackney Youth Awards, recognising his achievements in his local community.
Baroness Walmsley to open conference
Baroness Walmsley, Liberal Democrat Deputy Leader in the House of Lords, is to open our annual conference. 5 & 6 October. Reservations now open.
NextGen project for young people at Metabolic Support
Metabolic Support UK launches NextGen project for teenagers and young people with metabolic conditions, including Glycogen Storage Disease.
We are recruiting a CEO
AGSD-UK is seeking to recruit a Chief Executive Officer, a senior manager looking for a rewarding move within the charity sector. Closing date extended to 10 May.
World Record at Evelina GSD Family Day?
Maybe a World Record, new friendships, knowledge and reassurance for those affected by GSD at the Evelina Hospital’s GSD Family Day.
FDA grants Breakthrough Therapy Designation to Amicus
The U.S. FDA has granted Breakthrough Therapy Designation to Amicus’ AT-GAA in Late Onset Pompe Disease.