New Continuum of Care Model for McArdle’s.
IamGSD has led an international team of clinicians to develop and publish a continuum of care model to help physicians and patients to achieve the patient’s optimal state.
International GSD conference 2022.
The International GSD Conference (IGSD2022) will be virtual this year.
New information resources on gene therapy.
New information and videos – past, present and future of gene therapy from the American Society for Gene and Cell Therapy.
International GSD conference in Brazil next month.
The 5th International GSD Conference (IGSD2019) takes place in Porto Alegre, Brazil, from 14 to 16 November 2019.
AGSD-UK initiative spreads across the world.
In 2011 AGSD-UK ran a week-long walking course for people with McArdle disease. It has spread to four countries so far.
McArdle Disease Handbook reaches 30 countries.
Recent sales in Eastern Europe and the Middle East mean “The McArdle Disease Handbook” has reached patients and professionals in 30 countries.