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For International Pompe Day on Monday 15 April, Amicus Therapeutics UK have released a new infographic leaflet/poster.read more
Saturday 30th March saw the CATS team celebrate their successful first year with a get-together with GSD3 friends.read more
The Wendy House Nursery in Erdington, Birmingham, has signed up for ‘Jeans for Genes’ in 2019 to fundraise for AGSD-UK!read more
AGSD-UK member Abdullah Amerat won first prize in London’s Hackney Youth Awards, recognising his achievements in his local community.read more
Baroness Walmsley, Liberal Democrat Deputy Leader in the House of Lords, is to open our annual conference. 5 & 6 October. Reservations now open.read more
Metabolic Support UK launches NextGen project for teenagers and young people with metabolic conditions, including Glycogen Storage Disease.read more
AGSD-UK is seeking to recruit a Chief Executive Officer, a senior manager looking for a rewarding move within the charity sector. Closing date extended to 10 May.read more
Maybe a World Record, new friendships, knowledge and reassurance for those affected by GSD at the Evelina Hospital’s GSD Family Day.read more
Use the scroll links to move back and fore through our news stories.
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What and who we are
- National support group for those affected by Glycogen Storage Disease (GSD) and their families.
- Membership based with an elected board of trustees.
- A company limited by guarantee and a registered charity.
- Collaborators with UK rare disease and international GSD goups.
Keep in touch
Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.