Patient-identified phenomenon confirmed in GSD5.
A phenomenon identified on AGSD-UK’s walking courses has been presented in a poster at the World Muscle Society Congress.
Recent papers on CK, GSD5 and gene therapy.
Recent papers: one on genetic testing for high CK, a GeneReviews update on McArdle’s and a review of gene therapy in GSDs.
AGSD-UK says farewell to Allan Muir.
As Allan Muir leaves AGSD-UK, we try to capture in words what he has achieved for the UK and international GSD community over his 28 years of involvement.
The AGSD-UK office has moved!
The AGSD-UK office has now moved from Droxford, near Southampton, to Chester le Street, near Durham. The phone number stays the same.
Conference late bookings still open.
Routine bookings for the AGSD-UK Annual Conference, 5/6 October, are now closed. But we can still easily accommodate day delegates and possibly a few residential packages.
Could you manage our website and social media?
AGSD-UK is seeking someone to fill the role of Communications Manager with responsibility for our website and social media.