Conference late bookings still open.
Routine bookings for the AGSD-UK Annual Conference, 5/6 October, are now closed. But we can still easily accommodate day delegates and possibly a few residential packages.
Could you manage our website and social media?
AGSD-UK is seeking someone to fill the role of Communications Manager with responsibility for our website and social media.
Report of gene therapy in animal model of GSD5.
A new paper reports on the amelioration of disease through delivery of gene therapy in the mouse model of McArdle disease.
AGSD-UK initiative spreads across the world.
In 2011 AGSD-UK ran a week-long walking course for people with McArdle disease. It has spread to four countries so far.
Your thoughts on discreet labels for clinic visits?
Would you like to meet other GSD patients? What do you think of small sticky labels with the AGSD-UK tree logo for use in clinic?
Please input to survey of access to treatment.
Are you facing difficulties accessing your treatment? Please complete this survey by 30th September 2019 to enable Eurordis to collate experiences.