AGSD-UK working with NICE towards approval for new treatment for Pompe disease.
The latest edition of our magazine Glisten is here, dated August 2020. Packed with news, reports, research and fundraising ideas.
Pompe Support Team’s Medical Overview leaflet is now being used in Australia.
Audentes is now enrolling patients with late-onset Pompe disease in the Phase 1/2 clinical trial.
AGSD-UK has appointed Julie Jackson to a temporary post to address a large increase in requests for help with state benefits.