What and who are AGSD-UK?
- We are the national support group for those affected by Glycogen Storage Disease (GSD) and their families.
- We are a company limited by guarantee and a registered charity.
- We are a membership based association with an elected board of trustees.
- We collaborate with other UK based organisations and are members of the International Association for Muscle Glycogen Storage Disease and the International Pompe Association.
Keep up with the latest news
58% of respondents to our 2018 survey said the AGSD-UK web site is their main source of information about GSD.
That is John O’Groats to Land’s End! Lucy Wright cycled it over 13 days in late July early August 2018.
These calendars make a perfect yet useful gift, promote our cause, and raise funds to support the work of AGSD-UK.
A case report from the national McArdle Clinic highlights the benefits achieved through strength training with a local personal trainer.
Keep in touch
Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.