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Conferences

Next conference – 5/6 October 2019, Daresbury Park, Cheshire

Fundraising

Join our fundraising events or do your own thing.

Calendar and recipe book

Special offer… last few 2019 calendars now £5.

Welcome, take a look at our new site. What’s new & What’s to do. You can contribute.

What do you need from AGSD-UK?

I or a family member are diagnosed and need information

I or a family member need some help and support

I would like to get involved with supporting AGSD-UK

I need sources of medical guidance for someone with GSD

I need information on governance, policies, reporting and finance

What and who are AGSD-UK?

  • We are the national support group for those affected by Glycogen Storage Disease (GSD) and their families.
  • We are a company limited by guarantee and a registered charity.
  • We are a membership based association with an elected board of trustees.
  • We collaborate with other UK based organisations and are members of the International Association for Muscle Glycogen Storage Disease and the International Pompe Association.

Keep up with the latest news

It’s not fake news!

58% of respondents to our 2018 survey said the AGSD-UK web site is their main source of information about GSD.

Project JOGLE

That is John O’Groats to Land’s End! Lucy Wright cycled it over 13 days in late July early August 2018.

Resistance training aids McArdle’s

A case report from the national McArdle Clinic highlights the benefits achieved through strength training with a local personal trainer.

Keep in touch

Register FREE with AGSD-UK to keep in touch with the latest developments and future conferences, workshops, courses and fundraising events. It helps you keep in touch with other patients and families. You will receive our magazine, Glisten, by email.

Personal stories