Facing difficulties accessing your treatment?
AGSD-UK wishes to support this initiative by Eurordis, the voice of rare disease patients in Europe.
We would appreciate if you could take a few minutes to complete this anonymous questionnaire. Most questions offer multiple choice answers. Where text is required, concise, short and accurate answers are preferred.
Processing and reporting
The collected data will be processed by trained staff in order to point out the existing problems to the National Health authorities across Europe, and engage in a dialogue with them. Eurordis regrets that it does not have the resources to respond to individual cases.
You will be able to read the outcomes of this campaign on the Eurordis website. Eurordis regrets that it can not communicate the results directly to participants (as the survey is anonymous).
If you have any queries, please contact: François Houÿez, Director of Treatment Information and Access, Eurordis. Email François Houÿez at Eurordis.