Progress on NICE assessment of new treatments.
An update on the appraisal of treatments for Pompe by NICE.
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Recent news
- McArdle’s Walking in Wiltshire weekend. 16th May 2022
- AGSD-UK Help and Support. 19th April 2022
- “The McArdle’s Experience” walking course. 12th April 2022
- International Pompe Day. 7th April 2022
- What is a Clinical Trial? 25th March 2022
- England’s first Rare Diseases Action Plan published. 11th March 2022
- Sioned’s Rare Disease Day 2022. 27th February 2022
- Research Study – Exercise and Pompe Disease. 24th February 2022
- Rare Disease Day 2022. 21st February 2022
- Gene Therapy Trial for GSD1a Progress. 11th February 2022
- GSD3 Website Updates. 9th February 2022
- Over The Wall Camp Opportunities. 4th February 2022
- Extension of Early Access to Medicines Scheme for trial Pompe drug. 21st January 2022
- Success for our Benefits Advisor. 19th January 2022
- GSD in the National News. 14th January 2022