About us
About GSD
The GSDs
How we help
Help us
Medical
Contact
- Contact details
- Message us form

Select Page

ultragenyx-logo

Home
>
Media
>
ultragenyx-logo

Sunday, 23rd June 2019

Submit a Comment Cancel reply

Your email address will not be published. Required fields are marked *

Comment

Name *

Email *

Choose a category

Choose a category

Recent news

COVID-19 Vaccine FAQ’s. 8th January 2021
Christmas lights – by Irene and Frank Green. 18th December 2020
Winter Season of GSD talks and events is here. 4th December 2020
Seeking Lafora patients: Angelina’s story. 27th November 2020
How are you living with a liver GSD? 24th November 2020
Rob Wood. 17th November 2020
Could you be the EURORDIS Photo Award 2021 winner? 13th November 2020
National 3 Peak Challenge in 24 hours for Hugo. 6th November 2020
Kieron Stubbings raises over £6000 for AGSD-UK! 30th October 2020
Ann Phillips, 1934–2020, co-founder of AGSD-UK. 28th October 2020
Transatlantic diagnosis correction, after 29 years! 24th October 2020
EMA accepts regulatory submission for avalglucosidase alfa. 9th October 2020
Support AGSD-UK with AmazonSmile. 7th October 2020
Back to school bag tags. 25th September 2020
AGSD-UK attend NICE scoping workshop. 18th September 2020

Site updated: January 2021
© AGSD-UK 2018-2021

We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.

Registered Charity 1132271, go to Charity Commission

Company 6981121, go to Companies House

The GSD variants

GSD0
Von Gierke (GSD1)
Pompe (GSD2)
Cori (GSD3)
Andersen (GSD4)
McArdle (GSD5)
Hers (GSD6)
Tarui (GSD7)
GSD9
Another GSD?

Disclaimer

Our information does not replace personalised medical advice. Please read our disclaimer.

Keep in touch

Register or join

Register free or join as a member. Keep in touch with the latest developments, conferences, workshops, courses, family events and fundraising. And receive our magazine, Glisten.
Change of details? Please “Message us” or email us.

Web site contributions

Please contribute new ideas and report any broken links, typos, errors, etc. Visit our “You can contribute” page or email: webmaster.

Useful links

Home
Contact us
Send us a message
Calendar of events
Funders and sponsors
Volunteer for us
The Glycogen Store
Register or join
Site map
Privacy statement

Facebook
Twitter

© Copyright 2021 Association for Glycogen Storage Disease (UK) Limited · All rights reserved

The AGSD-UK website uses cookies: Find out more.