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Sunday, 23rd June 2019

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Recent news

Extension of Early Access to Medicines Scheme for trial Pompe drug. 21st January 2022
Success for our Benefits Advisor. 19th January 2022
GSD in the National News. 14th January 2022
CureGSD1b Research Ready Data Collection Plan. 7th January 2022
Winter Season 2022 22nd December 2021
Progress on NICE assessment of new treatments. 5th November 2021
Nigel Walker runs London Marathon to support AGSD-UK. 22nd October 2021
Winter Season of GSD talks and events coming soon. 18th September 2021
Louise Bett. 9th September 2021
Homecare and Coronavirus. 20th August 2021
COVID-19 vaccination for children and young people aged 12-17 years. 6th August 2021
Lived experience advisory panel. 31st July 2021
Whole Genome Sequencing for newborn screening. 23rd July 2021
Step-Free Access in London – BBC Politics Show 2nd July 2021
We are recruiting a CEO 23rd June 2021

We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.

Registered Charity 1132271, go to Charity Commission

Company 6981121, go to Companies House

The GSD variants

GSD0
Von Gierke (GSD1)
Pompe (GSD2)
Cori (GSD3)
Andersen (GSD4)
McArdle (GSD5)
Hers (GSD6)
Tarui (GSD7)
GSD9
Another GSD?

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