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Sunday, 23rd June 2019

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Recent news

New and Improved CureGSD1b Website. 24th June 2022
GSD & ME website is updated. 17th June 2022
Update on NICE assessment of new treatments. 11th June 2022
Moderna mRNA trial infusion for GSD1a. 10th June 2022
Volunteering opportunity at McArdle Clinic. 9th June 2022
McArdle’s Walking in Wiltshire weekend. 16th May 2022
AGSD-UK Help and Support. 19th April 2022
“The McArdle’s Experience” walking course. 12th April 2022
International Pompe Day. 7th April 2022
What is a Clinical Trial? 25th March 2022
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Sioned’s Rare Disease Day 2022. 27th February 2022
Research Study – Exercise and Pompe Disease. 24th February 2022
Rare Disease Day 2022. 21st February 2022
Gene Therapy Trial for GSD1a Progress. 11th February 2022

We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.

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The GSD variants

GSD0
Von Gierke (GSD1)
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Tarui (GSD7)
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