Large year on year increase
During 2018 the association had 108 newly registered people. Many of these are newly diagnosed, whilst others might have had a GSD for years but had not found AGSD-UK.
Last year, 2019, our new registrations increased to 134. That’s a rise of 26%.
Why such an increase?
We think there are two possible reasons.
- In January 2019 we launched the long awaited and wonderfully revamped website.
- During Spring 2019 the association did a huge promotion to all hospitals in the UK that might see someone with a GSD. This included all endocrine, neurology, rheumatology and gastroenterology departments.
Help raise awareness even more
Can you help further raise awareness of AGSD-UK? You could pass on information to other patients and make sure your own medical professionals are referring patients and families to our website.