Open conversations
Lucy McKay, CEO of Medics for Rare Diseases will be speaking with Gavin Jones, Director of Rare Disease for Open Health on Thursday 16th July as part of their Open Conversations series. Open Health are a family of expert practices, working in partenship to drive positive change in healthcare communications and market access.
Educating physicians in rare disease
Join them this Thursday when they will be discussing their mission to drive an attitude change towards rare diseases amongst medical students and doctors in training. They will be looking at core educational principles required to deliver better patient experience and outcomes for those living with rare diseases.
Dear Officer,
I would like to contact Dr David Weinstein to discuss my son’s case as he is 8 months old now and he has GSD type 1a. I would like to ask about the gene therapy he developed with his team and when it would be available for the public.
Dr Weinstein is at Connecticut Children’s Hospital, but he is moving on at the end of July. See our news story of May 13.