NORD’s Virtual Forum opens opportunity
NORD, the US National Organisation for Rare Disorders, is planning to hold this year’s patient and family forum, “Living Rare Living Stronger”, as a virtual event, due to the COVID-19 pandemic. Being on-line opens an opportunity for us – it makes it much more feasible for patients in the UK to join in, as it removes the need to travel to the US.
The event will be held over two days, 18 and 19 July. The programme runs from 12:00 to 6:30 on the Saturday and 12:00 to 4:30 on the Sunday. UK time is 4 hours ahead of theirs, so for us it is two afternoon/evening sessions, with a particularly late night on the Saturday.
If you think this might be of interest, you can have a look at the provisional agenda which is available on line. Then you need to register.