International Pompe Day.
This International Pompe Day, Pompe community members have been sharing what a typical day can look like with Pompe and what they find helpful.
You can check out their stories here:
AGSD-UK Facebook Plus don’t forget to sign up for the local Pompe get together on Saturday 7th June at 2.30 pm in Reading.
Bring your family and friends and catch up and share experiences with others affected over afternoon tea. Just email info@agsd.org.uk for details.