An opportunity not to miss
Lots of families came along, with friends and relatives too, to the AGSD-UK Family Day at Great Ormond Street Hospital (GOSH) on 9 November. The Giggle Company provided excellent entertainment.
The get-together is designed so that everyone can meet, with time to talk and share knowledge. Most families meet no one else with a GSD unless they come to the Family Day.
Support networks
Friendships and support networks are created. The teenagers have a WhatsApp group. Two of our GOSH teens have also now joined the Young People’s Forum at the hospital.
Nurses Mel McSweeny and Becky Bower provided time to talk with families, pictured below with dietitians Ide Herlihy and Rachel Skeath who ran a quiz with prizes.
Fun food quiz
How many spoons of sugar in a glass of cola? Dietitians at Great Ormond Street Hospital created a fun food quiz useful for all children living with a GSD.
This was the fourth Family Day provided by AGSD-UK, this time it was funded by a grant from The Edward Gostling Foundation.
Main photo: Games in full action with The Giggle Company.
Click on a thumbnail to enlarge, then click to scroll through our photos.
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Parachute play with the Giggle Company.
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L to R: Becky Bower, Mel McSweeney, Rachel Skeath and Ide Herlihy.
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The Giggle Company entertains.
family-day-prize-giving
Prize giving for the GSD quiz.
family-day-mohamed-family
The Mohamed family.
family-day-mel-and-yasmin
Mel talking with Yasmin, whose daughter has GSD3.
family-day-ide-herlihy-with-party-bags
Ide Herlihy with party bags.
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Skipping rope prizes.