Select Page

Countdown to Rare Disease Day 2020: 4

Rare Disease UK receptions

We are in a leap year and in 2020 Rare Disease Day falls on… Friday 29 FebruaryOver the next four weeks we will be reminding everyone about the day and what it stands for.

Rare Disease Day was created by EURORDIS – Rare Diseases Europe and its Council of National Alliances in 2008, and it has grown steadily in momentum ever since.

Rare Film Festival

Rare Disease UK offers various events, and this year tickets are on sale for the Rare Film Festival! Held at the Regent Street Cinema on Monday 10 February, the Rare Film Festival is your chance to take part in the UK’s first ever film festival dedicated to rare conditions. Tickets are available from £30 for Rare Disease UK supporters. Hurry as places are limited.

Plus free events

Highlighted below are free events you can attend, with speakers on relevant topics.

Registration for annual Rare Disease Day receptions are now open, please follow the link below to register and for more information, including details about guest speakers:

Cardiff: Senedd, Tuesday 25 February, 18.00-20.00

London: Westminster, Wednesday 26 February, 12.15.-14.15 

Edinburgh: Holyrood, Wednesday 4 March, 18.00-20.00

More details on the Rare Disease Day web page.