Tributes have been paid to Aldwyn John Richard Cooper who died on 4th February 2021.
Aldwyn is much loved and will always be remembered.
AGSD-UK Specialist Care Advisor Jane Lewthwaite commented:
“Aldwyn was such a kind and caring person. He gave his time so freely to join meetings as a patient representative nationally and internationally. Only last August he joined a meeting of the Medicines Health Regulatory Authority trying to help the cause for new treatments for Pompe disease. He always had an interesting story to tell and was especially proud that his diagnosing neurologist Dr Jarman participated in the TV programme, Diagnosis Detectives. Aldwyn also helped a homecare company create a video about having ERT infusions at work. He always wanted to help others gain better understanding. Aldywn will be very sadly missed.”
AGSD-UK would like to say thank you to all that have donated in Aldwyn’s memory. To date £660 has been raised via the obituary website Beyond Life.