About us
About GSD
The GSDs
How we help
Help us
Medical
Contact
- Contact details
- Message us form

Select Page

myocure-logo

Home
>
Media
>
myocure-logo

Friday, 31st May 2019

Submit a Comment Cancel reply

Your email address will not be published. Required fields are marked *

Comment

Name *

Email *

Choose a category

Choose a category

Recent news

Winter Season of GSD talks and events coming soon. 18th September 2021
Louise Bett. 9th September 2021
Homecare and Coronavirus. 20th August 2021
COVID-19 vaccination for children and young people aged 12-17 years. 6th August 2021
Lived experience advisory panel. 31st July 2021
Whole Genome Sequencing for newborn screening. 23rd July 2021
Step-Free Access in London – BBC Politics Show 2nd July 2021
We are recruiting a CEO 23rd June 2021
3 Peak Challenge successfully completed! 22nd June 2021
AGSD-UK’s Andrew Wakelin featured in National Trust magazine. 21st May 2021
Rare disease and the lessons learned from the COVID-19 pandemic. 11th May 2021
Liver Glycogen Storage Disease Top 11 Questions. 7th May 2021
Pompe book is going global! 27th April 2021
Ultragenyx Announces FDA Clearance of Investigational New Drug (IND) Application for UX053. 22nd April 2021
First Pompe patient dosed in FORTIS Trial of AT845. 16th April 2021

© AGSD-UK 2018-2021

We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.

Registered Charity 1132271, go to Charity Commission

Company 6981121, go to Companies House

The GSD variants

GSD0
Von Gierke (GSD1)
Pompe (GSD2)
Cori (GSD3)
Andersen (GSD4)
McArdle (GSD5)
Hers (GSD6)
Tarui (GSD7)
GSD9
Another GSD?

Disclaimer

Our information does not replace personalised medical advice. Please read our disclaimer.

Keep in touch

Register or join

Register free or join as a member. Keep in touch with the latest developments, conferences, workshops, courses, family events and fundraising. And receive our magazine, Glisten.
Change of details? Please “Message us” or email us.

Web site contributions

Please contribute new ideas and report any broken links, typos, errors, etc. Visit our “You can contribute” page or email: webmaster.

Useful links

Home
Contact us
Send us a message
Calendar of events
Funders and sponsors
Volunteer for us
The Glycogen Store
Register or join
Site map
Privacy statement

Facebook
Twitter

© Copyright 2021 Association for Glycogen Storage Disease (UK) Limited · All rights reserved

The AGSD-UK website uses cookies: Find out more.