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Friday, 31st May 2019

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Recent news

Virtual Festive Event. 29th November 2023
Update on the DTX401 programme for GSD1a. 16th November 2023
Newborn Genomes Programme. 4th October 2023
NICE recommends cipaglucosidase alfa plus miglustat. 15th August 2023
New Continuum of Care Model for McArdle’s. 7th July 2023
Seminar for people affected by neuromuscular diseases. 17th May 2023
Main Event 2023 Programme 26th April 2023
International Pompe Day 15 April 2023. 17th April 2023
London Marathon 2023. 24th March 2023
Rare Disease Day 2023. 28th February 2023
Help Us Raise Awareness. 7th February 2023
Newsflash – The Main Event 2023 date change! 21st December 2022
The Main Event 2023. 10th November 2022
Liberating Research GSD1a Study. 1st November 2022
McArdle’s walking courses 2023. 24th September 2022

We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.

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The GSD variants

GSD0
Von Gierke (GSD1)
Pompe (GSD2)
Cori (GSD3)
Andersen (GSD4)
McArdle (GSD5)
Hers (GSD6)
Tarui (GSD7)
GSD9
Another GSD?

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