About us
About GSD
The GSDs
How we help
Help us
Medical
Contact
- Contact details
- Message us form

Select Page

maggie-lilburn

Home
>
Media
>
maggie-lilburn

Wednesday, 1st July 2020

Submit a Comment Cancel reply

Your email address will not be published.

Comment

Name

Email

Choose a category

Choose a category

Recent news

Glisten August 2020 is out! 21st August 2020
COVID-19 impact survey for families. 14th August 2020
Pompe Support Team’s leaflet used in Australia! 7th August 2020
Audentes Pompe Gene Therapy Trial News. 31st July 2020
Free Online Mindfulness Course. 24th July 2020
Open Health Webinar – Educating Physicians. 14th July 2020
Metabolic Disorders Awareness Week. 8th July 2020
Mental health and motivation for exercise. 3rd July 2020
Maggie Lilburn 1st July 2020
Coronavirus: How to wear a mask. 24th June 2020
MetabERN survey – deadline extension! 12th June 2020
NORD plans Virtual Forum – 18 and 19 July. 11th June 2020
Benefits Advisor joins the AGSD-UK team. 27th May 2020
Move for USA-based GSD expert Dr. David Weinstein. 13th May 2020
Rare Barometer survey of COVID-19 in rare disease. 12th May 2020

Site updated: September 2020
© AGSD-UK 2018-2020

We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.

Registered Charity 1132271, go to Charity Commission

Company 6981121, go to Companies House

The GSD variants

GSD0
Von Gierke (GSD1)
Pompe (GSD2)
Cori (GSD3)
Andersen (GSD4)
McArdle (GSD5)
Hers (GSD6)
Tarui (GSD7)
GSD9
Another GSD?

Disclaimer

Our information does not replace personalised medical advice. Please read our disclaimer.

Keep in touch

Register or join

Register free or join as a member. Keep in touch with the latest developments, conferences, workshops, courses, family events and fundraising. And receive our magazine, Glisten.
Change of details? Please “Message us” or email us.

Web site contributions

Please contribute new ideas and report any broken links, typos, errors, etc. Visit our “You can contribute” page or email: webmaster.

Useful links

Home
Contact us
Send us a message
Calendar of events
Funders and sponsors
Volunteer for us
The Glycogen Store
Register or join
Site map
Privacy statement

Facebook
Twitter

© Copyright 2020 Association for Glycogen Storage Disease (UK) Limited · All rights reserved

The AGSD-UK website uses cookies: Find out more.