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Friday, 12th June 2026

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Recent news

McArdle walking courses 2026 6th June 2026
Booking now open for our Main Event 4th-5th July Loughborough. 7th May 2026
April 15th is International Pompe Day. 15th April 2026
15th April is International Pompe Day. 15th April 2025
McArdle walking courses open 9th April 2025
Rare Disease Day 2025 28th February 2025
Research opportunities for people affected by hepatic GSDs. 25th February 2025
Update on the Beam GSD1a programme. 27th August 2024
Virtual AGSD-UK support. 21st August 2024
Update on Spark Therapeutics Pompe gene therapy programme. 23rd July 2024
Update on phase 3 study of DTX401. 5th June 2024
International Pompe Day. 15th April 2024
Save the Date! 4th April 2024
Rare Disease Day 2024. 29th February 2024
Cipaglucosidase alfa (Pombiliti®) is accepted for use within NHS Scotland. 12th December 2023

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We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.

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The GSD variants

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