In McArdle disease, building and maintaining a high level of aerobic fitness is essential. Here we introduce key aspects which can help you do just that.
Children & Parents and Young People, Wales, 2025
For 2025 children under 18, together with a parent, are invited to join the “Children & Parents” category within this course.
For details of the location, accommodation, costs and bookings please see the adult walking course page.
Children and parents from England, Scotland, France and USA.
Experienced course leaders
This course is led by Bronte Thomas who has led courses for several years, with several experienced walk leaders. The courses are overseen by Andrew Wakelin, the AGSD-UK McArdle’s coordinator.
Setting off on a level path.
The programme
In effect this is a mini-version of the walking course but with a greater emphasis on fun and making friends. The learning is more individual and the walks are shorter, and combined with visits and sightseeing that will help to fix the memories.
We will at times walk with the older course members, but a lot of the time the walks will be specially selected to suit the particular group of children attending.
It is intended for children with McArdle’s and one parent, or possibly both. If requested, we will try to accommodate unaffected siblings – please contact us if you would like to consider this.
Old (leader Andrew) and young (5 year old Lucy) on the first Children & Parents event.
A chance to meet young adults
As part of this course there will be much time spent together with young adult McArdle-ites. Seeing how they are getting on can be very reassuring for both the children and their parents.
Travelling from overseas
In the past children and parents have attended from UK, USA, France and Germany. Those from outside the UK have often integrated attendance at this event into a longer family holiday in the UK, giving the best value for the travel cost.
Lucy and Irene admiring a “tree” growing crystals – a present from the mother of a McArdle boy in Japan.
BOOKING YOUR PLACE
Please see the page for the adult walking course.
If you and your McArdle child cannot attend the whole event, but would like to visit for a day, please get in touch with the McArdle’s Coodinator, Andrew Wakelin, to discuss the possibilities.