There is good support from our GSD3 coordinator, the Cori Action Team Support (CATS) and the GSD3 social media channel.
Here are some more ideas about sources of help and support.

Children’s Liver Disease Foundation Visit

Local Citizen’s Advice Bureau Visit

Genetic Alliance and Rare Diseases UK Visit

Muscular Dystrophy UKVisit
Regional Neuromuscular Centres
Locate your regional NHS neuromuscular centre for a referral and/or advice