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Cori disease (GSD3)

Information & Support

There is good support from our GSD3 coordinator, the Cori Action Team Support (CATS) and the GSD3 social media channel.

Top Tips for GSD3

Helpful hints for living well with Cori disease. Written by the CATS team, this book covers many practical topics including travel, financial help, diet and nutrition, exercise, the health service and aids for living. It is hoped people will use the tips to cope with the day-to-day challenges of living with GSD3.

This 124 page, pocket-sized paperback is available free of charge to all in the UK diagnosed with GSD3. For others around the world, it will soon be available for purchase from The Glycogen Store. Anyone may download a PDF.

View Top Tips for GSD3 online and flick through the pages.

Download a PDF of the “Top Tips” book.

 

Our GSD3 leaflet

A six-page, 1/3rd A4, leaflet introducing GSD3, Cori disease.

View the GSD3 leaflet online and flick through the pages.

Download a PDF of the GSD3 leaflet.

A story for children affected by liver GSD

GSD, The Way To Be

Title by: Josiah Ridley (GSD)
Story by: Laurie Fiske
Illustrations by: Ivy Cohen (GSD)

Many thanks to the authors for permission to offer access to this story. With special thanks to Dr. David A Weinstein for all his care and support of GSD patients around the world.

View the booklet online and flick through the pages.

Click here to download the PDF.