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Saturday, 27th October 2018
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Cori disease (15)
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GSD families (35)
Hers disease GSD6 (3)
International (10)
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News (211)
Pompe disease (41)
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5th June 2024
International Pompe Day.
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Rare Disease Day 2024.
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12th December 2023
Virtual Festive Event.
29th November 2023
Update on the DTX401 programme for GSD1a.
16th November 2023
Newborn Genomes Programme.
4th October 2023
NICE recommends cipaglucosidase alfa plus miglustat.
15th August 2023
New Continuum of Care Model for McArdle’s.
7th July 2023
Seminar for people affected by neuromuscular diseases.
17th May 2023
Main Event 2023 Programme
26th April 2023
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