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Calendar of previous year events

A record of our events in the previous year.

Events for 2020

When? What? Where? Who for?
10-14 Feb Feeding Tube Awareness Week Worldwide Mainly hepatic GSDs
26 Feb Rare Disease Event, Pompe Support Team members joining Salford Royal Hospital Pompe
29 Feb Rare Disease Day Worldwide Everyone
7 Mar Evelina Family Day
POSTPONED UNTIL LATER IN YEAR
Evelina Hospital, London Hepatic GSDs
14 Mar GSD3 get-together with CATS
POSTPONED UNTIL LATER IN YEAR
Cudworth Village Hall, near M42/ M6 junction GSD3
4 Apr Pompe Social Meeting
CANCELLED
Premier Inn, Stoke on Trent Pompe – everyone welcome
15 Apr International Pompe Day Meetings in Swansea and Southampton
CANCELLED
Pompe
15-16 May European Conference on Rare Diseases & Orphan Products Stockholm, Sweden Specialist conference
18-24 May The annual IamGSD ‘Global Walking Week’ Worldwide McArdle’s and other muscle GSDs
19 May Hepatic Guidelines drafting meeting Birmingham Children’s Hospital Hepatic professionals
6-13 Aug Walking with McArdle’s course Snowdonia McArdle’s
13-17 Aug Children & Parents event Snowdonia McArdle’s
Any day 16-20 Sept Jeans for Genes Day, fundraiser Nationwide Everyone
Sept New Born Screening month Nationwide Everyone
Oct Muscular Dystrophy UK ‘Muscles Matter’ series of presentations  Online Muscle GSDs
8-9 Oct

 

National Organisation for Rare Disorders (North America) ‘Entering a New Era’ summit

Online Everyone
11 Oct Metabolic Support UK Future plans for IMD services by speakers from BIMDG Online Everyone
17 Oct Gemma’s AGSD-UK Quiz for fun (11am) Online Everyone
17-18 Oct AGSD-UK Annual Conference and AGM
CANCELLED DUE TO COVID-19
Wyboston Lakes, Bedfordshire Everyone
18-24 Oct

Invisible Disabilities Week

Worldwide Everyone
28 Nov

RAREfest20

Online Everyone
Dec-Feb Our Winter Season
Talks, presentations and events
Online Everyone