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Calendar of previous year events

A record of our events in the previous year.

Events for 2022

When? What? Where? Who for?
Jan Our Winter Season
Talks, presentations and events
Online Everyone
30 Jan AGSD-UK AGM Online AGSD-UK Members
28 Feb Rare Disease Day Worldwide Everyone
15 Apr International Pompe Day Worldwide Everyone
12 Jun Hepatic Social
0945 Coffee & Chat
1030 GSD3 Trial Presentation


email for zoom details



9 Jul Pompe Social
0900 New treatments presentation followed by social
Online Pompe
30 Jul Pompe get together Birmingham Pompe
2nd Oct Hepatic get together Trentham Gardens, Staffordshire Hepatic
20-22 Oct IGSD Conference Virtual Everyone
29 Oct McArdles get together Online McArdles
3 Dec Pompe get together Wales Pompe