Select Page

Calendar of previous year events

A record of our events in the previous year.

Events for 2019

Date/s Event Who for
20-26 May IamGSD Global Walking Week People with McArdle’s and related muscle GSDs.
19 Jun Presentation “Gene Therapy approaches for LSD” at conference of British Society for Gene and Cell Therapy Those interested in Pompe (GSD2), but it is just one session in the conference.
20 Jun Neuromuscular Centre Open Day, Winsford, Cheshire. More details here. All muscle GSDs
19-26 Jul Walking course, Pembrokeshire McArdle’s (GDSD5) and other muscle GSDs
24-28 Jul Children & Parents event, Pembrokeshire Children with McArdle’s (GSD5) and a parent/s
4 Aug Prudential RideLondon-Surrey, sponsorship cycling event Everyone – we have 20 places available

5-6 Oct 

Annual conference and workshops, Cheshire Everyone

Sun 6 Oct 

Annual General Meeting – elect trustees, vote on business topics, Cheshire Members and visitors

Sat 19 Oct
Postponed, new date to come

Family Day at Birmingham Children’s Hospital GSD children and their parents

25-27 Oct

AMDA/IPA International Pompe Patient and Scientific Conference, San Antonio, Texas Pompe

Sat 9 Nov

Family Day at Great Ormond Street Hospital GSD children and their parents

14-16 Nov

 

IGSD2019, 5th International GSD Conference, Brazil Everyone

3 Dec

Giving Tuesday Everyone