A record of our events in the previous year.
Events for 2024

When? | What? | Where? | Who for? |
14 Jan |
AGM 0930 |
Online | AGSD-UK members |
25 Jan | Living Well Social | Online | Everyone |
29 Feb | Rare Disease Day | Worldwide | Everyone |
14 Mar | Parents’ Group | Online | Everyone |
13 Apr |
Pompe social 2pm-4pm |
Fox and Grapes Leeds LS15 4NJ |
Pompe |
29 Jun | Pompe social | Newcastle | Pompe |
29 Jul – 5 Aug | Under 21s Walking Course | Brecon Beacons | McArdle’s |
5 Aug – 9 Aug | Main walking course | Brecon Beacons | McArdle’s |
7 Sep | Hepatic social | Reading | Hepatic |
9 Sep | Virtual Parent/Carer support | Online | Everyone |
9-10 Nov | The Main Event 24 | Loughborough | Everyone |