About us
About us
Home
Our membership
Stronger together
Our governance
Our organisation
Vision and Mission
Meet the team
Your trustees
Our staff
Volunteers and teams
Meet our volunteers
The founders
What we do
Ongoing activities
Campaigning
Projects
Funders and sponsors
Annual reports
Policies
Our policies
Transparency
Impartiality statement
Privacy statement
Medical disclaimer
About GSD
Types & Causes
What is GSD?
What causes GSD?
Seeking a diagnosis?
The GSD variants
Ultra-rare disease?
Clinical support
Specialist centres
Health policy
UK Rare Disease Strategy
The GSDs
GSD0
Diagnosis & Follow up
Information & Support
Research & Development
Von Gierke (GSD1)
Diagnosis & Follow up
Information & Support
Research & Development
Pompe (GSD2)
Diagnosis & Follow up – Infantile Onset (IOPD)
Diagnosis & Follow up – Late Onset (LOPD)
Information & Support
Pompe Support Team
Research & Development
Cori (GSD3)
Diagnosis & Follow up
Information & Support
Research & Development
Andersen (GSD4)
Diagnosis & Follow up
Information & Support
Research & Development
McArdle (GSD5)
Diagnosis & Follow up
Information & Support
Activity & Exercise
Research & Development
Hers (GSD6)
Diagnosis & Follow up
Information & Support
Research & Development
Tarui (GSD7)
Diagnosis & Follow up
Information & Support
Activity & Exercise
Research & Development
GSD9
Information & Support
Parents guide and info
Research & Development
Extra rare GSDs
GSD13
Danon
Lafora
Another GSD?
How we help
Support
Support
Our social media
Maps of GSD people
Information
Publications
Glisten magazine
Videos
Glossary of terms
Events
Calendar of events
Types of event
Conferences
Winter Season 2020/2021
Annual Conference 2020
Shop
The Glycogen Store
Help us
Help us help
Register or join
Donate
Fundraise for us
Sponsor us
Volunteer for us
Contribute to web site
Medical
Health professionals
COVID-19 coronavirus
RCGP eLearning
Medical Advisory Board
Research
Contact
Contact details
Message us form
Select Page
second-wind-heart-rate
Home
>
Media
>
second-wind-heart-rate
Monday, 18th February 2019
Choose a category
Choose a category
Select Category
Cori disease (12)
Exercise (4)
Fundraising (17)
GSD families (26)
Hers disease GSD6 (2)
International (8)
McArdle disease (19)
News (148)
Pompe disease (27)
Research (47)
Support (30)
Tarui disease (3)
Von Gierke disease (8)
Young people (18)
Recent news
Liver Glycogen Storage Disease Top 11 Questions
7th May 2021
Pompe book is going global!
27th April 2021
Ultragenyx Announces FDA Clearance of Investigational New Drug (IND) Application for UX053.
22nd April 2021
First Pompe patient dosed in FORTIS Trial of AT845.
16th April 2021
Clinical Survey Study for GSD3.
1st April 2021
Update on Pompe Disease Treatment.
30th March 2021
RCPCH &Us Rare Disease Survey.
25th March 2021
Aldwyn Cooper 1949 – 2021.
19th March 2021
Trial: Seroprevalence study in Pompe disease.
2nd March 2021
Rare Disease Day 2021
26th February 2021
Eurordis H-Care Survey of rare diseases results.
19th February 2021
Winner announced of the PST Avatar Competition.
12th February 2021
Spark Therapeutics doses the first participant in Gene Therapy trial.
5th February 2021
Vitamin D supplements for clinically extremely vulnerable.
22nd January 2021
COVID-19 Vaccine FAQ’s.
8th January 2021
The AGSD-UK website uses cookies:
Find out more.
Okay, thanks
