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Rare Disease Day 2021

Rare Disease Day 2021 – 2 days to go!

The aim is to make this year the biggest yet to help raise awareness of rare conditions in the UK and improve access to care, treatment, information and support. Rare conditions are individually uncommon but collectively there are over 6,000 conditions that will affect 1 in 17 people in the UK. Rare Disease Day 2021 will take place on Sunday 28 February and it will be marked in more than 85 countries around the world.


Get involved on social media

The easiest way to take part in Rare Disease Day 2021 is to make sure you are following Rare Disease UK on Twitter, Facebook and Instagram so you can re-share their content. Tag them in your content so they can share it and add it to their social media stories.

Remember to always use the hashtags #RareDiseaseDay2021 and #RareReality


Meet the 6 heroes of Rare Disease Day 2021

The official Rare Disease Day 2021 video is now available to view.

The video shines a light on the global and wide community of 300 million people and over 6000 rare diseases.

6 continents, 6 portraits ,6 heroes, 6 lives.

This year, the video puts six rare disease patient stories in the spotlight.

Watch to learn about the rare disease community across the world.