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Recent news
- New and Improved CureGSD1b Website. 24th June 2022
- GSD & ME website is updated. 17th June 2022
- Update on NICE assessment of new treatments. 11th June 2022
- Moderna mRNA trial infusion for GSD1a. 10th June 2022
- Volunteering opportunity at McArdle Clinic. 9th June 2022
- McArdle’s Walking in Wiltshire weekend. 16th May 2022
- AGSD-UK Help and Support. 19th April 2022
- “The McArdle’s Experience” walking course. 12th April 2022
- International Pompe Day. 7th April 2022
- What is a Clinical Trial? 25th March 2022
- England’s first Rare Diseases Action Plan published. 11th March 2022
- Sioned’s Rare Disease Day 2022. 27th February 2022
- Research Study – Exercise and Pompe Disease. 24th February 2022
- Rare Disease Day 2022. 21st February 2022
- Gene Therapy Trial for GSD1a Progress. 11th February 2022