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Friday, 10th May 2019
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Cori disease (12)
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GSD families (26)
Hers disease GSD6 (2)
International (8)
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Young people (18)
Recent news
We are recruiting a CEO
23rd June 2021
3 Peak Challenge successfully completed!
22nd June 2021
AGSD-UK’s Andrew Wakelin featured in National Trust magazine.
21st May 2021
Rare disease and the lessons learned from the COVID-19 pandemic.
11th May 2021
Liver Glycogen Storage Disease Top 11 Questions.
7th May 2021
Pompe book is going global!
27th April 2021
Ultragenyx Announces FDA Clearance of Investigational New Drug (IND) Application for UX053.
22nd April 2021
First Pompe patient dosed in FORTIS Trial of AT845.
16th April 2021
Clinical Survey Study for GSD3.
1st April 2021
Update on Pompe Disease Treatment.
30th March 2021
RCPCH &Us Rare Disease Survey.
25th March 2021
Aldwyn Cooper 1949 – 2021.
19th March 2021
Trial: Seroprevalence study in Pompe disease.
2nd March 2021
Rare Disease Day 2021
26th February 2021
Eurordis H-Care Survey of rare diseases results.
19th February 2021
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