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Friday, 10th May 2019
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Cori disease (14)
Exercise (6)
Fundraising (20)
GSD families (32)
Hers disease GSD6 (2)
International (8)
McArdle disease (23)
News (178)
Pompe disease (33)
Research (57)
Support (36)
Tarui disease (3)
Von Gierke disease (10)
Young people (21)
Recent news
McArdle’s Walking in Wiltshire weekend.
16th May 2022
AGSD-UK Help and Support.
19th April 2022
“The McArdle’s Experience” walking course.
12th April 2022
International Pompe Day.
7th April 2022
What is a Clinical Trial?
25th March 2022
England’s first Rare Diseases Action Plan published.
11th March 2022
Sioned’s Rare Disease Day 2022.
27th February 2022
Research Study – Exercise and Pompe Disease.
24th February 2022
Rare Disease Day 2022.
21st February 2022
Gene Therapy Trial for GSD1a Progress.
11th February 2022
GSD3 Website Updates.
9th February 2022
Over The Wall Camp Opportunities.
4th February 2022
Extension of Early Access to Medicines Scheme for trial Pompe drug.
21st January 2022
Success for our Benefits Advisor.
19th January 2022
GSD in the National News.
14th January 2022
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