About us
About us
Home
Our membership
Stronger together
Our governance
Our organisation
Vision and Mission
Meet the team
Your trustees
Our staff
Volunteers and teams
Meet our volunteers
The founders
What we do
Ongoing activities
Campaigning
Projects
Funders and sponsors
Annual reports
Policies
Our policies
Transparency
Impartiality statement
Privacy statement
Medical disclaimer
About GSD
Types & Causes
What is GSD?
What causes GSD?
Seeking a diagnosis?
The GSD variants
Ultra-rare disease?
Clinical support
Specialist centres
Health policy
UK Rare Disease Strategy
The GSDs
GSD0
Diagnosis & Follow up
Information & Support
Research & Development
Von Gierke (GSD1)
Diagnosis & Follow up
Information & Support
Research & Development
Pompe (GSD2)
Diagnosis & Follow up – Infantile Onset (IOPD)
Diagnosis & Follow up – Late Onset (LOPD)
Information & Support
Pompe Support Team
Research & Development
Cori (GSD3)
Diagnosis & Follow up
Information & Support
Research & Development
Andersen (GSD4)
Diagnosis & Follow up
Information & Support
Research & Development
McArdle (GSD5)
Diagnosis & Follow up
Information & Support
Activity & Exercise
Research & Development
Hers (GSD6)
Diagnosis & Follow up
Information & Support
Research & Development
Tarui (GSD7)
Diagnosis & Follow up
Information & Support
Activity & Exercise
Research & Development
GSD9
Information & Support
Parents guide and info
Research & Development
Extra rare GSDs
GSD13
Danon
Lafora
Another GSD?
How we help
Support
Support
Our social media
Maps of GSD people
Information
Publications
Glisten magazine
Videos
Glossary of terms
Events
Calendar of events
Types of event
Conferences
Winter Season
Annual Conference 2020
Shop
The Glycogen Store
Help us
Help us help
Register or join
Donate
Fundraise for us
Sponsor us
Volunteer for us
Contribute to web site
Medical
Health professionals
COVID-19 coronavirus
RCGP eLearning
Medical Advisory Board
Research
Contact
Contact details
Message us form
Select Page
calendar-graphic
Home
>
Media
>
calendar-graphic
Friday, 10th May 2019
Choose a category
Choose a category
Select Category
Cori disease (10)
Exercise (4)
Fundraising (17)
GSD families (24)
Hers disease GSD6 (1)
International (8)
McArdle disease (19)
News (138)
Pompe disease (21)
Research (40)
Support (29)
Tarui disease (3)
Von Gierke disease (7)
Young people (17)
Recent news
Eurordis H-Care Survey of rare diseases results.
19th February 2021
Winner announced of the PST Avatar Competition.
12th February 2021
Spark Therapeutics doses the first participant in Gene Therapy trial.
5th February 2021
Vitamin D supplements for clinically extremely vulnerable.
22nd January 2021
COVID-19 Vaccine FAQ’s.
8th January 2021
Christmas lights – by Irene and Frank Green.
18th December 2020
Winter Season of GSD talks and events is here.
4th December 2020
Seeking Lafora patients: Angelina’s story.
27th November 2020
How are you living with a liver GSD?
24th November 2020
Rob Wood.
17th November 2020
Could you be the EURORDIS Photo Award 2021 winner?
13th November 2020
National 3 Peak Challenge in 24 hours for Hugo.
6th November 2020
Kieron Stubbings raises over £6000 for AGSD-UK!
30th October 2020
Ann Phillips, 1934–2020, co-founder of AGSD-UK.
28th October 2020
Transatlantic diagnosis correction, after 29 years!
24th October 2020
The AGSD-UK website uses cookies:
Find out more.
Okay, thanks
