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Wednesday, 9th January 2019
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Cori disease (6)
Exercise (2)
Fundraising (8)
GSD families (12)
International (5)
McArdle disease (9)
News (50)
Pompe disease (10)
Research (16)
Support (8)
Tarui disease (2)
Von Gierke disease (5)
Young people (12)
Recent news
Family Fun Day at Royal Victoria Infirmary, Newcastle.
19th July 2019
BMJ journal publishes education and practice notes on CK.
16th July 2019
McArdle Disease Handbook reaches 30 countries.
13th July 2019
Buriton Art Trail raises £400 for AGSD-UK.
8th July 2019
Journal reviews progress on gene therapy for GSDs.
4th July 2019
Dylan’s idea to help his friend leads to breakthroughs.
1st July 2019
Collaboration boosts prospect of GSD3 therapy
26th June 2019
In case you missed these web site developments.
24th June 2019
Amy’s school Fun Run for her brother Eric.
20th June 2019
Big leap forward in genetic diagnosis of rare diseases.
17th June 2019
Invitation to young people with a rare condition
13th June 2019
More personal stories wanted
10th June 2019
Camps available: Children’s Liver Disease Foundation
5th June 2019
Gene therapy updates due at our 2019 conference
3rd June 2019
Save the date – IGSD2019 conference, Brazil
30th May 2019
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