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Wednesday, 9th January 2019
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Cori disease (14)
Exercise (6)
Fundraising (20)
GSD families (32)
Hers disease GSD6 (2)
International (8)
McArdle disease (23)
News (178)
Pompe disease (33)
Research (57)
Support (36)
Tarui disease (3)
Von Gierke disease (10)
Young people (21)
Recent news
McArdle’s Walking in Wiltshire weekend.
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“The McArdle’s Experience” walking course.
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What is a Clinical Trial?
25th March 2022
England’s first Rare Diseases Action Plan published.
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Sioned’s Rare Disease Day 2022.
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Research Study – Exercise and Pompe Disease.
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Rare Disease Day 2022.
21st February 2022
Gene Therapy Trial for GSD1a Progress.
11th February 2022
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9th February 2022
Over The Wall Camp Opportunities.
4th February 2022
Extension of Early Access to Medicines Scheme for trial Pompe drug.
21st January 2022
Success for our Benefits Advisor.
19th January 2022
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14th January 2022
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