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Wednesday, 9th January 2019
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Cori disease (9)
Exercise (3)
Fundraising (12)
GSD families (17)
International (8)
McArdle disease (18)
News (111)
Pompe disease (15)
Research (31)
Support (19)
Tarui disease (3)
Von Gierke disease (6)
Young people (15)
Recent news
Maggie Lilburn
1st July 2020
Coronavirus: How to wear a mask.
24th June 2020
MetabERN survey – deadline extension!
12th June 2020
NORD plans Virtual Forum – 18 and 19 July.
11th June 2020
Benefits Advisor joins the AGSD-UK team.
27th May 2020
Move for USA-based GSD expert Dr. David Weinstein.
13th May 2020
Rare Barometer survey of COVID-19 in rare disease.
12th May 2020
Support the call for new born screening.
7th May 2020
Survey of muscle GSDs and COVID-19 issues.
22nd April 2020
Mendelian – reducing diagnostic delay in GSDs.
8th April 2020
AGSD-UK new registrations up by 26% in 2019.
27th March 2020
Newsflash – GSD3 get-together postponed!
10th March 2020
Newsflash – Evelina family day postponed!
5th March 2020
IamGSD offers McArdle “Second Wind” T-shirts.
4th March 2020
Rare Disease Day – and happy 20th Lauren.
29th February 2020
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