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Tuesday, 9th October 2018
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Cori disease (15)
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GSD families (34)
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International (10)
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Recent news
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Cipaglucosidase alfa (Pombiliti®) is accepted for use within NHS Scotland.
12th December 2023
Virtual Festive Event.
29th November 2023
Update on the DTX401 programme for GSD1a.
16th November 2023
Newborn Genomes Programme.
4th October 2023
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15th August 2023
New Continuum of Care Model for McArdle’s.
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Seminar for people affected by neuromuscular diseases.
17th May 2023
Main Event 2023 Programme
26th April 2023
International Pompe Day 15 April 2023.
17th April 2023
London Marathon 2023.
24th March 2023
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