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Friday, 27th November 2020

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Recent news

Update on the Beam GSD1a programme. 27th August 2024
Virtual AGSD-UK support. 21st August 2024
Update on Spark Therapeutics Pompe gene therapy programme. 23rd July 2024
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Cipaglucosidase alfa (Pombiliti®) is accepted for use within NHS Scotland. 12th December 2023
Virtual Festive Event. 29th November 2023
Update on the DTX401 programme for GSD1a. 16th November 2023
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We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.

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