We have a coordinator to offer support, an annual conference, a social media channel and information cards for your pocket.
Muscular Dystrophy UK
GSD7 is a neuromuscular condition which comes within the remit of the Muscular Dystrophy UK (MDUK). Although MDUK is less active in GSDs than the AGSD-UK, they do have a information, support and advocacy services accessible by phone, post and email. And they have a team of Care Advisors who can give specialist advice and support and help deal with organisations such as Social Services and the NHS.