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Tarui Disease (GSD7)

Information & Support

We have a coordinator to offer support, an annual conference, a social media channel and information cards for your pocket.

Muscular Dystrophy UK

GSD7 is a neuromuscular condition which comes within the remit of the Muscular Dystrophy UK (MDUK). Although MDUK is less active in GSDs than the AGSD-UK, they do have a information, support and advocacy services accessible by phone, post and email. And they have a team of Care Advisors who can give specialist advice and support and help deal with organisations such as Social Services and the NHS.

Go to the Muscular Dystrophy UK web site.