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Tuesday, 15th January 2019
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Recent news
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Rare Disease Day 2024.
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Cipaglucosidase alfa (Pombiliti®) is accepted for use within NHS Scotland.
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Virtual Festive Event.
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4th October 2023
NICE recommends cipaglucosidase alfa plus miglustat.
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New Continuum of Care Model for McArdle’s.
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17th May 2023
Main Event 2023 Programme
26th April 2023
International Pompe Day 15 April 2023.
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London Marathon 2023.
24th March 2023
Rare Disease Day 2023.
28th February 2023
Help Us Raise Awareness.
7th February 2023
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