About us
About GSD
The GSDs
How we help
Help us
Medical
Contact
- Contact details
- Message us form

Select Page

The Main Event reviews 2024

Home
>
Media
>
The Main Event reviews 2024

Thursday, 10th July 2025

The Main Event reviews 2024

Submit a Comment Cancel reply

Your email address will not be published. Required fields are marked *

Comment *

Name *

Email *

Choose a category

Choose a category

Recent news

15th April is International Pompe Day. 15th April 2025
McArdle walking courses open 9th April 2025
Rare Disease Day 2025 28th February 2025
Research opportunities for people affected by hepatic GSDs. 25th February 2025
Update on the Beam GSD1a programme. 27th August 2024
Virtual AGSD-UK support. 21st August 2024
Update on Spark Therapeutics Pompe gene therapy programme. 23rd July 2024
Update on phase 3 study of DTX401. 5th June 2024
International Pompe Day. 15th April 2024
Save the Date! 4th April 2024
Rare Disease Day 2024. 29th February 2024
Cipaglucosidase alfa (Pombiliti®) is accepted for use within NHS Scotland. 12th December 2023
Virtual Festive Event. 29th November 2023
Update on the DTX401 programme for GSD1a. 16th November 2023
Newborn Genomes Programme. 4th October 2023

© AGSD-UK 2018-2024

We help individuals and families affected by Glycogen Storage Disease (GSD) by putting people in contact, providing information and support, publishing a magazine and holding conferences, workshops, courses and family events.

Registered Charity 1132271, go to Charity Commission

Company 6981121, go to Companies House

The GSD variants

GSD0
Von Gierke (GSD1)
Pompe (GSD2)
Cori (GSD3)
Andersen (GSD4)
McArdle (GSD5)
Hers (GSD6)
Tarui (GSD7)
GSD9
Another GSD?

Disclaimer

Our information does not replace personalised medical advice. Please read our disclaimer.

Keep in touch

Register or join

Register free or join as a member. Keep in touch with the latest developments, conferences, workshops, courses, family events and fundraising. And receive our magazine, Glisten.
Change of details? Please “Message us” or email us.

Web site contributions

Please contribute new ideas and report any broken links, typos, errors, etc. Visit our “You can contribute” page or email: webmaster.

Useful links

Home
Contact us
Send us a message
Calendar of events
Funders and sponsors
Volunteer for us
The Glycogen Store
Register or join
Site map
Privacy statement

Facebook
X

© Copyright 2025 Association for Glycogen Storage Disease (UK) Limited · All rights reserved

The AGSD-UK website uses cookies: Find out more.