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Professional expertise

I am so lucky to get to know your organization and be exposed to other professional expertise, and most importantly get to learn from patients’ stories. Medical professional, UAE

Forever in my mind

I enjoyed the photos of the walking course this year. I will always be grateful for my week in Wales. What I learned from you will forever be in the back of my mind. Lorraine Baguley, Australia

Inca Trail

The organisers of the Inca Trail trek to Macchu Pichu have accepted the letter you wrote and I am now cleared to go. Thank you so much, you are a star! Deborah Corcoran, UK

Thanks to Allan

Huge, huge thanks to Allan. Your dedication and hard work made an incredible difference. Welcome Neil. Hope to see you all at the conference. Doris Noe, NI

Help with diagnosis

I really appreciate all your help and support, even though my daughter’s diagnosis was not a muscle GSD. Anonymous mother