Saturday, 29th February 2020
Regarding my search for a diagnosis, hopefully things are moving forward. I had to get my medical records and go through them to ensure I was being tested correctly. You were the catalyst, so thank you for all your help and I’ll be in touch. Martin, UK
Friday, 20th December 2019
Just writing to say hello. Still no formal diagnosis, but we are tackling it bit by bit and, meanwhile, the second-wind training keeps me nearly pain-free and functional. Very grateful for all of your help over the years. Melanie, Canada
Tuesday, 19th November 2019
Thank you to my Pompe friends, Julie Garfield is a real treasure who inspires me to try even harder; the AGSD-UK Specialist Care Adviser, Jane Lewthwaite, who never fails to be there when I need her; and the PST for working to make lives better. John Foxwell,...
Wednesday, 23rd October 2019
Very caring, patient, informative, supportive and knowledgeable about McArdle’s. Always good about answering questions anyone has about GSD5 and related health concerns. Been there for me whenever I’ve needed. Marie Buck, USA
Tuesday, 22nd October 2019
AGSD-UK were a lifeline when I was first diagnosed with Pompe. Understanding, supportive and informative. Jane Randall, UK
