Tuesday, 28th July 2020
Thank you to Jane for all your hard work organising the GSD Family Day at the Royal Victoria Infirmary Newcastle. It was a really good opportunity for all the families. See you again next year. Alice and Sandra, Paediatric Metabolic Dietitians UK
Friday, 24th July 2020
Thanks for enabling us to participate in the useful parent consultation meeting about trial design and giving us a chance to give some feedback, which wasn’t done before. It also gives some confidence to us parents as our points of view are taken into account....
Friday, 26th June 2020
Just to let you know we have banked the money raised through the grant applications that you made for us. We are very thankful for this money, it takes the pressure of us a little during our frequent hospital trips with our little girl. Liam, UK
Friday, 29th May 2020
Thank you so much for your response. I have passed on the information. I am very grateful to have someone like you to ask when these sorts of issues arise, and I thank you most sincerely. I hope we can meet sometime. SW, Australia
Monday, 20th April 2020
It means a lot to me to know that I have support from you, the AGSD-UK website and the McArdle clinic. It is good to know there are other people who understand our condition without us having to explain, and it’s nice to feel I am not on my own. Eileen,...
