You tell us how we did…
It is really valuable for staff, volunteers and members to hear feedback on our efforts. Please use the “Message us” form.
I would like to express my heartfelt gratitude to AGSD UK for their invaluable support. This remarkable charity is dedicated to assisting individuals with GSD, and I'm profoundly thankful for their unwavering commitment.
Thank you very much for your help in regards to helping with this pip renewal once again. You are able to communicate well through all different platforms whether that be through text or over the phone even through emails. You explain thoroughly and provide reassurance so that we are able to get through this difficult process which has helped me put my mind at ease.
I’ve had very good news yesterday that A has been awarded DLA again and has been back dated to 22nd September when they initially stopped it. Once again many thanks to you and your wonderful team.
Thank you so much for sending me the educational materials. They are so helpful to our patients in the Adult Metabolic Diseases Clinic, Vancouver General Hospital.
Margaret O’Riley, Metabolic Nurse Educator, Canada
Thank you, this is very helpful! Thanks again for your time and resources!
I really appreciate your vast knowledge and willingness to share.
Thank you very much
Thank you very much because following the appointment with the specialist I was at the point of giving up my search for a diagnosis.
Thank you for translationsI want to thank you for giving attention and care to translations for a country such as mine, with a small population and very scarce cases of McArdle disease. It means a lot.AS, Greece
Impressive websiteWhen I recently went on your web site, I was very impressed with the layout and the information.JC, USA
Thank you so much Andrew, you’re always very kind and helpful. It can be a great help for me and for others all around the world.