You tell us how we did…
It is really valuable for staff, volunteers and members to hear feedback on our efforts. Please use the “Message us” form.
Professional expertise
I am so lucky to get to know your organization and be exposed to other professional expertise, and most importantly get to learn from patients’ stories.
Medical professional, UAE
Inca Trail
The organisers of the Inca Trail trek to Macchu Pichu have accepted the letter you wrote and I am now cleared to go. Thank you so much, you are a star!
Deborah Corcoran
Thanks to Allan
Huge, huge thanks to Allan. Your dedication and hard work made an incredible difference. Welcome Neil. Hope to see you all at the conference.
Doris Noe
Help with diagnosis
I really appreciate all your help and support, even though my daughter’s diagnosis was not a muscle GSD.
Anonymous mother
Letter of support
Thank you for writing the letter of support! I can’t begin to express how grateful I am. I feel confident that I will now be taken much more seriously.
Rebecca, USA
Children’s event
Thanks AGSD-UK. I properly loved Wales, such a wonderful time, the most beautiful weather and lovely friends.
Rachel Thomas
Walking course
Thank you for once again arranging a wonderful week of walks, fun and friendship. We are indebted to you for all that you do for us.
Sioned Williams
Publications and posts
We are learning a lot with you and your writings! Your work is changing the way people see illness, not only McArdle’s, but others. Never will thank you enough.
Dina, Portugal
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