You tell us how we did…
It is really valuable for staff, volunteers and members to hear feedback on our efforts. Please use the “Message us” form.
I’ve had very good news yesterday that A has been awarded DLA again and has been back dated to 22nd September when they initially stopped it. Once again many thanks to you and your wonderful team.
Thank you so much for sending me the educational materials. They are so helpful to our patients in the Adult Metabolic Diseases Clinic, Vancouver General Hospital.
Margaret O’Riley, Metabolic Nurse Educator, Canada
Thank you, this is very helpful! Thanks again for your time and resources!
I really appreciate your vast knowledge and willingness to share.
Thank you very much
Thank you very much because following the appointment with the specialist I was at the point of giving up my search for a diagnosis.
Thank you for translationsI want to thank you for giving attention and care to translations for a country such as mine, with a small population and very scarce cases of McArdle disease. It means a lot.AS, Greece
Impressive websiteWhen I recently went on your web site, I was very impressed with the layout and the information.JC, USA
Thank you so much Andrew, you’re always very kind and helpful. It can be a great help for me and for others all around the world.
We haven't spoke in quite awhile and you are my go to person when it comes to questions about McArdle’s. I do appreciate you going out of your way to get information for me.
Staying in touch
Thank you for staying in touch with me. I'm deeply appreciative of all you do for everyone with a GSD.