You can contribute to our website

The headline needs to be about 4 words long and a maximum of 8 words. The summary should be 15 to 20 words. Those two are what appears in the scrollable list of news items on the home page. The main text of the story can be about 300 words. Please write in the third person. We need an image that can be cropped to a ratio of 1 to 1.6 (e.g. 500 px deep by 800 px wide). Please also read the note on images, below. If you do not have an image, please suggest a theme for something that we could source.

We would like to hear how we helped those affected by GSD. (Hopefully more positive than negative!) Please give a two or three word heading and up to a maximum of 30 words of text, plus your name. 

If you are British or live in the UK, have a diagnosis of one of the GSDs and have an interesting story, then we would like to hear it. Patients‘ stories are a great help to newly diagnosed people. Please write in the first person. We require a length of 400 to 600 words. Text can be submitted in MS Word, or in a plain text file. We need a “head and shoulders” photo of the author which is suitable to be cropped to a square, plus one or two other photos relevant to your story, or of you in some activity. They can be landscape or portrait shape. Please also read the note on images.

If you feel that there is something extra which is needed within the section on your particular GSD, in the first instance please contact the GSD coordinator and discuss the matter with them. If appropriate, they will then develop the idea and pass it on to us. If there is no coordinator for your GSD, please contact the Webmaster directly.

If you come across a term that is not in our glossary and you feel should be, please bring this to our attention.

We prefer photos, but if those are not appropriate then maybe send us an image such as a screen shot of a website, a scan of a book cover, or something else that is the subject of the story. In photos, if people are identifiable you do of course need to secure their permission. Digital photographs are the best and need to be of medium to high resolution. When it comes to sending them, please email (don’t send through Facebook, Instagram, etc) and give us the actual photo files – do not put them into an application such as Word.

If you wish to make a video that is simply a bit of fun, by all means just go ahead and then send us a link to enable us to consider it.

But if it is something more serious, please liaise with us in advance. Remember three of the basics:

1. Shoot in landscape format, not portrait, as landscape is the only format for displaying video.
2. Use a tripod rather than shooting hand-held.
3. Good sound quality is essential. Try to avoid background noise. If possible, use a separate microphone rather than relying on capturing the sound on the camera’s built-in microphone.

Please bear in mind that we will edit all submissions. For “Personal stories” we will give you an opportunity to check the final text.